The end of May and all of June 2021 have been horrid for me. I have felt pain at levels that I never have before and the fatigue I’ve felt has been a revelation to say the least. I’m not a quitter, and most people who know me well know I have a high tolerance for pain. But this time round, I found it really hard. The fatigue alone knocked me out! It’s truly what tips the scales in favour of my illness. I feel like I’m fighting this rheumatoid arthritis (RA) with no gloves on. When you can do very little, how do you fight a battle?
The extrovert in me made some attempts to show up among colleagues, family or friends. Mostly, I think it was shamed into doing that. Shamed by my own self, at that. I hated how I sounded, which was like I had been crying for hours or like I had a bad head cold. The joy in my voice was missing and it was most apparent to me. I even lacked the desire to really be with anyone. I wanted to rest instead. Me? The extrovert within felt trapped and a little doomed. Messaging people was also tough. I reminded myself of phrases for emails, WhatsApp messages, etc, that sounded positive. The extrovert felt that need. But it was hard to keep it up and inevitably, I had to acknowledge that I needed to go to bed or that I wasn’t going to turn the camera on for the video call, etc. I have been feeling quite defeated.
There are so many things that I want to do. I want to walk and play with my gregarious pooch, Loki. I want to figure out how to get on top of my work with the challenges of COVID. I want success there. I want to read many books, listen to podcasts, be out and about, talk to friends and the list goes on. I want to help celebrate birthdays, bake and cook for family or friends and plan the next gathering for when our lockdown ceases. It’s pretty normal stuff that I want. And there’s a sinking feeling inside because it is these pretty normal things that I am finding hard to do. To give it some context, my 88 year old father has been doing more things for himself than he would otherwise be, if I were more like me. I’m not okay with this.
This pain and fatigue has got old. I’m bored of it. I’m done with it. I told a friend I wish there was some place that I could stick it, for it is unwanted. It is annoying me. I feel justifiably so!
The voices of reason are blessings. They are a wonderful smattering of people for whom I’m very thankful. All these feel like a blast of fresh air, compared to how I feel when am smothered by this ridiculous battle. They have been a real solace. I do thank God for them.
Life keeps going on. Work needs to be done, friends and family cared for, and the list goes on. In the midst of all this, I have learnt to take a moment. My mind’s buzzing with tiredness and anxiety of what lies ahead. I remind myself not to be anxious. God loves me more than the birds of the air. I’m more precious, it says. I remind Jesus that at times like this, I don’t feel very precious to Him. I know He died for me, giving me a certain hope for an inheritance. Pondering on it still doesn’t make me feel very precious or loved. It’s a hope that feels so far away. I remind Jesus too of all His many blessings on those who called out to Him. The times when people just came to Him and said “if you will” or “if you only say the word..” or when they told themselves if they could only touch his clothing, they would be healed. I remind Jesus that He is also the same God, yesterday, today and forever. So why not the same for me? As I say these things to Him, I also tell Him that He will have an answer for me like He did for Job. I’m not satisfied by that. I ask him instead to give me a moment like He did for Jacob: a victory in battle with a more powerful being than himself (Genesis 32: 24-29).
I don’t know where my chats with Jesus are headed. Some days I tell Him, I’m too tired to talk and maybe if He makes me better, I could talk more. I’m not sure if He has a laugh at that point or if He sighs or what. I do have to try this. I agree, it is rather base. So do I stop talking to Him? I’m not ready to do that. It didn’t quite work for King David, I have to say! I’m not ready to say goodbye to Jesus. I feel very strongly in my heart that it is a relationship I never want to terminate.
I’m glad that I can have these conversations with Him, because even when I am bored sick of this situation, I know He is listening. He promised that. So I trust that this process of me telling Him what’s deep inside me, is what He wants, even if the words aren’t pretty and even if I sound slurred, groggy and can’t complete my sentences. Many times, I’ve fallen asleep on Him. I can’t tell everyone everything of how I’m feeling. What I say to those around me, is barely the tip of the iceberg. The eternal optimist within me masks things and makes them sound well. I put pressure on myself to see the silver lining. Jesus doesn’t put that pressure on me. When I feel really awful and demand if He is really there, He reminds me of how He hung on that cross for me. He reminds me of how The Father rejected Him and His prayer so that I wouldn’t have to face that rejection. So we’re back to that inheritance He has for me, which He now reminds me, is imperishable, unlike the troubles of this world, which will fade away.
My RA makes me anxious. I worry about my performance at work. I don’t feel as capable as I used to be. I worry about sustaining the relationships I have with family and friends. I worry about abilities I will lose. I worry I can’t serve in church. I worry that I will face the same ending as my mum did. The signs are there. I cannot say all these things to my loved ones, every time I am seized by them. It would be overwhelming. I can’t do that to them. With Jesus, I don’t have this worry. I can bring myself to Him and lay it all out there. He understands weariness, pain, temptation, loneliness, frustration, rejection and a whole host of things. He knows what it’s like when no one listens, so I trust He won’t stop listening. I cannot stop going to Him. I cannot stop holding on. Maybe, this is what Jacob did right. He refused to let go. He got out of that battle limping. Victorious but with a limp. I will remember this lesson.









